Self care is a term we hear a lot now when mental health is mentioned on
social media. What does it mean, though? What some would consider
avoidance, others would view as a healthy activity that allows a person
to take time out from the exhausting daily battle of living with a
mental illness.
Essentially, what we're talking about is doing something
that makes you feel good. When I first went to the doctors and was
given a sick note for three weeks because of "stress at work" one of the
most memorable things he said to me was "you need to do whatever it is
that makes you feel good." As my "stress at work" gradually developed in
to full blown severe depression followed by a steadily worsening
anxiety, I started to realise that not many things do make me feel good
these days. This isn't surprising considering one of the main symptoms
of depression is to lose interest in things. So how do you provide
yourself with one day of self care let alone #365daysofselfcare when you
seem to have lost interest in everything? It's incredibly difficult. In
fact, it's so difficult that if you don't have any personal experience
of battling with depression, I'm not sure you can understand. Try to
imagine hearing your favourite song but instead of feeling the emotions
that gave it a special place in your life, you feel nothing or worse,
you feel negative.
I'm going to stop at this point. Partly to change paragraphs as this
bloggy style of writing does have a tendency to degenerate in to an
unstructured rant, but mainly to emphasise what I've just said and to
ask you to think about it really carefully. Try to imagine hearing your
favourite song but instead of feeling some form of pleasure, you feel
nothing, or worse, you feel negative. It's difficult, isn't it? How
could that song not make you feel pleasure? One reason could be that the
hippocampus, the part of your brain that deals with memory and emotion
has started to shrink. Recent studies have shown this happens to people
who suffer from depression and anxiety. This physical change can lead to
significant disturbances in cognitive function and changes the way we
process our emotions, so instead of feeling good about something we once
enjoyed, we feel something negative. As somebody who has and does go
through this on a daily basis, I can confirm it is confusing and at
times terrifying. The one thing that keeps me going, is focusing on the
fact that these feelings are being created by a physical change in the
brain which is caused by a mental illness, so in that sense, they are
not typically "natural" feelings.
What next, though? If the things you used to enjoy give you no pleasure,
what are you supposed to do in terms of self care? This is something I
struggle with but @blurtfoundations #365daysofselfcare campaign reminded
me that even the smallest and seemingly least significant activity can
make a massive difference to the way you feel. I do these things when I
feel like I seriously need to focus on self care.
1. Meditate.
I don't burn incense or sit cross legged and barefoot on the floor while
chanting and listening to wind chimes, but I do sit for 10 minutes and
focus on the physical sensations, sounds and other non visual senses.
All this does is provide me with an opportunity to "observe" how I'm
feeling without being consumed by overwhelming negative thoughts. One of
the main symptoms of my condition is that I sometimes feel detached
from reality and don't really know how I'm feeling from one moment to
the next. It's taken a lot of practice and honestly, some days I can't
manage it, but when I do manage to meditate, it often allows me to
acknowledge the fact that I feel depressed or anxious without spiralling
in to a full blown panic attack or further negative thinking.
2. Put my health first.
This is probably the hardest part of the whole process. When I have
established how I'm feeling, this stage is when I decided what I'm
capable of doing. With things like work and money to consider, it can
feel impossible to put your health before the never ending drive to
acquire more currency or to cement your reputation in the professional
world, but ignoring these feelings and just carrying on (or "manning up"
as the truly ignorant might say) can make things far worse than you can
imagine. The last time I tried to "man up" and just get on with things,
I took a terrible minimum wage job in a callcentre to pay my way.
Within three weeks I had been prescribed Valium for severe anxiety and
been signed off work for two weeks. As I was working on a zero hour
contract, that meant no pay. I'm sure I was entitled to statutory sick
pay but I didn't feel capable of going through the process to claim for
it. This step isn't really a solution, it's basically harm reduction. The financial problems that come with mental health problems could take
up a full blog post on their own so I won't pretend I have any easy
answers about that, but I will say that if you don't acknowledge the way
you feel and put your health first, things will definitely get much
worse. In other words, if you feel like crying, vomiting or hurting
yourself when you think about going to work, it's probably time to do
something to help yourself.
3. Accept that you're ill.
This can be a difficult stage as well. I can physically walk around, I
can put one foot in front of the other and go to the kitchen to fill up a
glass of water and microwave a bowl of soup, so surely I'll be able to leave the
house and get on with my life as normal. No, this isn't the case,
unfortunately. When depression really kicks in, doing things as simple
as feeding and washing yourself become almost impossible. A trip to the
bathroom requires half an hours planning and mental effort. Imagine
you've just got back from a festival or you've just finished a race.
Your body and mind are so fatigued that all you want to do is sleep.
That's how it feels when you have depression. That's why it's not as
simple as just "getting on with it." If you feel like this, accept it
and try to understand that this is an illness, you are not being lazy or
weak. It is not your fault. If you had a broken leg, you wouldn't be
able to walk properly and more importantly, nobody would expect you to.
When you have depression, you shouldn't be expected to function
normally. Unfortunately, the world and indeed, the systems of financial
and medical support we have need to catch up with this way of thinking
but this is basically why it's ok for you to stop trying to pretend
everything's alright when it really isn't.
4. Take care of the basics.
So now that you've accepted you are ill, there are a few things you can
do to make sure things don't get a lot worse. Eating, drinking and
washing are the three main ones. Even if you can only manage to
microwave some soup, drink a glass of water and get in the shower for
five minutes, it's important to prioritise these things if you can. If
you're anything like me, it probably won't have an effect on your mood
but it will mean you can avoid physical health problems that come from
malnutrition and neglecting personal hygiene. Get fed, watered and clean
every day and you're doing well. Seriously, that's a huge part of the
process taken care of, so if you manage to do these things, reward
yourself.
(If you can't manage to do these things and you feel like your health is
deteriorating further, this would be the stage to seek further help
from a friend, family member or a GP.)
5. Do something that makes you feel good.
This is the part of the process that is probably the most misunderstood
and perhaps the reason that ignorant people label those with mental
health problems lazy and weak. "Sitting around and doing things that
make you feel good is all very nice but haven't you got work to be
getting on with? I wish I could sit at home eating crisps and watching
Netflix all day!" If you've ever returned to work after having time off
for mental health problems, this is probably something you've heard. Not
only is this attitude ignorant, it's also offensive. If somebody with a
physical injury was confined to bed, it's unlikely people would say "I
wish I got to have a sleep in and stay in bed all day." It doesn't
really make sense. The pleasure of sleeping in and staying in bed is so
vastly outweighed by the physical illness the thought wouldn't even
cross our minds.
So at this point, even if it is difficult, it's important to understand
that being kind to yourself and allowing yourself to do something that
makes you feel good is not some kind of illicit, skivey treat, but
actual treatment of your condition. By doing something you enjoy, you
are allowing yourself the best chance for your brain to release the
chemicals associated with pleasure and happiness and consequently, you
are are also providing yourself with the best chance of recovery.
When things get so bad that you've lost interest in the things you used
to enjoy, something that can allow you to feel pleasure is to engage in
an activity you used to enjoy without expecting to feel anything
positive. This can feel like as much of a struggle as anything else but
it is often worth trying. I play old computer games, watch films I used
to watch as a kid, listen to music, read fiction, eat sweets, text
friends. Sometimes I manage to relax enough to forget about the illness
for a while. It took me around a day and a half of pure anxiety to
settle down recently but eventually, I did manage to feel calm enough to
focus on something. After losing myself in an old computer game for a
few hours I eventually managed a few smiles and one or two moments of
genuine enjoyment. It might seem insignificant but by doing this, I've
changed the way I feel for the better and taken control of a situation
that felt previously unmanageable.
The world can seem like it's against
people with mental health problems and people might even shout advice at
you but it's important to remember to pay attention to how you really
feel, then do something about it. As always, this was written in one go so I hope it makes sense and as
always, if you are suffering with a mental health problem, I hope this
post has helped in some way.
X
Monday, 25 July 2016
Tuesday, 12 July 2016
It's really not what you think.
It's been a while since my last blog post. I've been busy working from
home and have found it pretty difficult to motivate myself to write
anything that I'm not being paid for. It obviously takes up free time
and effort, so the absence of any kind of tangible reward makes
motivation hard to find at times.
This time, I'd like to talk about Mental Health services. Since moving to Manchester I've been on a waiting list for high intensity psychological therapy. After around 15 months I've finally spoken to a qualified psychologist who explained that I will need to wait another six months before I can begin the complex work that I need to do. In the interim, I've been referred to a mindfulness service. Something I feel quite positive about as my own experiences of using mindfulness to assess my moods has been quite effective. The psychologist I spoke to was brilliantly empathetic, extremely well qualified and listened carefully to my previous experiences of therapy and how I felt about them.
For those unfamiliar with talking therapy, there are a lot of different types. I've been through Cognitive Behavioural Therapy, Transactional Analysis, Person Centred and probably other types. Depending on a person's needs, each type of therapy can be extremely effective but can also create further problems if the main issues a patient needs to discuss are not addressed.
My experience of being assessed and referred to services might be helpful or at least interesting to anybody experiencing a similar situation.
Assessments often take place over the phone. You will be asked about how you feel each day in specific terms and usually to rate your experiences on a numbered scale. So for example, do you feel as if you would be better off dead or hurting yourself in some way. 1 being not at all, 9 being all the time.
This can be a very effective way of obtaining an overall picture of how a person may be feeling, however, the prescriptive nature of the process and the increase in the use of lower level practitioners can often lead to a dehumanised, impersonal and systematic approach to problems which are by their very nature, human and difficult to quantify.
Having suffered with severe depression and anxiety for over 7 years and having been through a range of different treatment options and still not, "fixed" I became very frustrated with the way things seemed to work. The services to help people with mental health issues do exist but unless your problem can be fixed by a short, six week block of sessions or an online tool, the chances are you will find them woefully inadequate to meet your needs.
The practitioners I've spoken to have been incredibly kind and well meaning. I've been told not to beat myself up so much, to be kinder to myself and to "lighten up." One of them even suggested I took a day trip to the seaside town of Whitby... (She was probably my least favourite.) The issue here is that after paying for some in depth psychological therapy, (transactional analysis) I have been able to ascertain some of the things that make me the way that I am. It was painful, difficult and exhausting, but it's also the reason I'm not dead and able to function in a job now, rather than lying in bed feeling numb or worse. The thing with that kind of therapy, is that it requires a practitioner who is very experienced or qualified to go in to a lot of depth with an individual. Most of the lesser qualified practitioners I have spoken to were very nice but some seemed to struggle with non standard English to such a degree, the process itself became almost as frustrating as the condition it was designed to treat.
One practitioner asked me; "So, how did you feel when you decided not to kill yourself." I replied with "indifferent." She said "different to what?" "No." I said. "Indifferent." "I don't know what you mean." She said. Now this isn't really anyone's fault, but that kind of situation shouldn't arise. Having the courage, patience and resilience to seek help and then go through the numerous assessment processes is a difficult enough experience for the individual involved without problems with communication from the practitioner who has been assigned to help them.
So for now, I'm trying to keep up with mindfulness exercises and am looking forward to (that should probably read, nervously anticipating) the day that my actual psychological therapy starts again. I know I shouldn't beat myself up and I know I shouldn't be so hard on myself, but if it was as simple as hearing somebody say that a few times, I'd have been "fixed" by my loving friends and family years ago. There is no easy solution to mental health issues, the fact is, it's a complicated and challenging area that requires an army of highly qualified medical professionals rather than lots of well meaning but less educated practitioners to tick some boxes and make it look as if something is being done.
Kind words almost always help and probably more than you think, too. They aren't a substitute for actual medical treatment, though. That takes time, for the practitioner to understand the patient, money, to pay the wages of somebody who has a higher level (Masters or above) qualification in a relevant area and lastly, awareness. That's an ethereal word that doesn't mean very much to a lot of people. "Raising awareness" usually means wearing a ribbon or a bit of rubber around your wrist or maybe even not drinking for a while in return for sponsor money. Nobody seems especially "aware" of the cause they are campaigning for because the cause is usually a complex, difficult and nuanced entity that can't be reduced to a few simple words or phrases. By "awareness" I mean a genuine, tacit understanding that mental health problems are as debilitating and as life threatening as physical ones and should therefore be given the same amount of money and time by our health service. If it seems unrealistic to assign a psychologist to everybody in the UK who has severe depression, I think you might begin to see the scale of the problem. I'm tired of feeling as if I should be grateful for inadequate treatment and I have a feeling I'm probably not the only one.
I'll probably write another one of these soon. As always, if you are going though any kind of mental health issue. I hope this has been helpful in some way. X
This time, I'd like to talk about Mental Health services. Since moving to Manchester I've been on a waiting list for high intensity psychological therapy. After around 15 months I've finally spoken to a qualified psychologist who explained that I will need to wait another six months before I can begin the complex work that I need to do. In the interim, I've been referred to a mindfulness service. Something I feel quite positive about as my own experiences of using mindfulness to assess my moods has been quite effective. The psychologist I spoke to was brilliantly empathetic, extremely well qualified and listened carefully to my previous experiences of therapy and how I felt about them.
For those unfamiliar with talking therapy, there are a lot of different types. I've been through Cognitive Behavioural Therapy, Transactional Analysis, Person Centred and probably other types. Depending on a person's needs, each type of therapy can be extremely effective but can also create further problems if the main issues a patient needs to discuss are not addressed.
My experience of being assessed and referred to services might be helpful or at least interesting to anybody experiencing a similar situation.
Assessments often take place over the phone. You will be asked about how you feel each day in specific terms and usually to rate your experiences on a numbered scale. So for example, do you feel as if you would be better off dead or hurting yourself in some way. 1 being not at all, 9 being all the time.
This can be a very effective way of obtaining an overall picture of how a person may be feeling, however, the prescriptive nature of the process and the increase in the use of lower level practitioners can often lead to a dehumanised, impersonal and systematic approach to problems which are by their very nature, human and difficult to quantify.
Having suffered with severe depression and anxiety for over 7 years and having been through a range of different treatment options and still not, "fixed" I became very frustrated with the way things seemed to work. The services to help people with mental health issues do exist but unless your problem can be fixed by a short, six week block of sessions or an online tool, the chances are you will find them woefully inadequate to meet your needs.
The practitioners I've spoken to have been incredibly kind and well meaning. I've been told not to beat myself up so much, to be kinder to myself and to "lighten up." One of them even suggested I took a day trip to the seaside town of Whitby... (She was probably my least favourite.) The issue here is that after paying for some in depth psychological therapy, (transactional analysis) I have been able to ascertain some of the things that make me the way that I am. It was painful, difficult and exhausting, but it's also the reason I'm not dead and able to function in a job now, rather than lying in bed feeling numb or worse. The thing with that kind of therapy, is that it requires a practitioner who is very experienced or qualified to go in to a lot of depth with an individual. Most of the lesser qualified practitioners I have spoken to were very nice but some seemed to struggle with non standard English to such a degree, the process itself became almost as frustrating as the condition it was designed to treat.
One practitioner asked me; "So, how did you feel when you decided not to kill yourself." I replied with "indifferent." She said "different to what?" "No." I said. "Indifferent." "I don't know what you mean." She said. Now this isn't really anyone's fault, but that kind of situation shouldn't arise. Having the courage, patience and resilience to seek help and then go through the numerous assessment processes is a difficult enough experience for the individual involved without problems with communication from the practitioner who has been assigned to help them.
So for now, I'm trying to keep up with mindfulness exercises and am looking forward to (that should probably read, nervously anticipating) the day that my actual psychological therapy starts again. I know I shouldn't beat myself up and I know I shouldn't be so hard on myself, but if it was as simple as hearing somebody say that a few times, I'd have been "fixed" by my loving friends and family years ago. There is no easy solution to mental health issues, the fact is, it's a complicated and challenging area that requires an army of highly qualified medical professionals rather than lots of well meaning but less educated practitioners to tick some boxes and make it look as if something is being done.
Kind words almost always help and probably more than you think, too. They aren't a substitute for actual medical treatment, though. That takes time, for the practitioner to understand the patient, money, to pay the wages of somebody who has a higher level (Masters or above) qualification in a relevant area and lastly, awareness. That's an ethereal word that doesn't mean very much to a lot of people. "Raising awareness" usually means wearing a ribbon or a bit of rubber around your wrist or maybe even not drinking for a while in return for sponsor money. Nobody seems especially "aware" of the cause they are campaigning for because the cause is usually a complex, difficult and nuanced entity that can't be reduced to a few simple words or phrases. By "awareness" I mean a genuine, tacit understanding that mental health problems are as debilitating and as life threatening as physical ones and should therefore be given the same amount of money and time by our health service. If it seems unrealistic to assign a psychologist to everybody in the UK who has severe depression, I think you might begin to see the scale of the problem. I'm tired of feeling as if I should be grateful for inadequate treatment and I have a feeling I'm probably not the only one.
I'll probably write another one of these soon. As always, if you are going though any kind of mental health issue. I hope this has been helpful in some way. X
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